Monday, April 18, 2011


I am 26 and my father was diagnosed with ALS in August of 2009.   My mother, my 23 year old brother, and I have been the only caregivers for him for some time now and it is getting harder and harder.

I have decided to start this blog in order to address the toll (emotional, etc.) that having a parent with ALS takes on teen/young adult children.

It seems to me that it is difficult to connect with others going through the same situation because, at least in the support group my family attends, a lot of the young adult children live away from home, or the PALS do not have such young children.  I was thinking that it might be easier to connect with more people in the same situation as I am by using the internet.

Maybe if we all shared our experiences, in general and regarding specific topics, in one place we could form sort of a teen/young adult support group.

If anyone who reads this has any ideas for topics, please let me know!